With aortic root 39mm. Any guidelines? As youve mentioned, sometimes it can be useful to visit a cardiologist who has an interest in athletes and their heart problems. There are many surgical options depending upon the particular circumstances. An early indicator of BAV is a heart murmur, which is an abnormal sound caused by the turbulent . In addition to running, I also perform moderate to high intensity resistance (weight) training 5-6 times per week. Have you considered meeting with a heart surgeon to talk about the situation? It sounds like youve gotten conventional advice regarding sports where there is a risk of bodily injury. For most athletes with only mild enlargement of the aorta and no problems with the aortic valve, there should be no activity restrictions. Again, this is a topic that is not yet well-researched. Currently, it is estimated that about 5% of those with bicuspid aortic valve disease will experience aortic dissection. Benefits: no blood thinning (with attendant risks) needed. Bicuspid aortic valve (aka BAV) is a form of heart disease in which two of the leaflets of the aortic valve fuse during development in the womb resulting in a two-leaflet (bicuspid) valve instead of the normal three-leaflet (tricuspid) valve. Barbara Walters Prepares for Heart Surgery - ABC News And its always valuable to frame up discussion in terms of how much risk is acceptable. I was hoping that if the ultrasound numbers dont change much, the endurance will not decrease significantly. Thank you for what you do and for your responsiveness. Theres no reason to not be CPR certified.. Can you clarify what may not be true please? In this case, would it be an overwhelming pain? 2) He can lead a normal life & can continue his training with regular echocardiography control (once in a year). Advances in treatment have allowed many babies with known congenital heart disease to survive well into adulthoodand many people who have congenital heart disease go on to live long, productive lives. Make no mistake, though. i.e. I would just like to share my experience of having a Aortic Valve replacement. looking forward for healthy life without surgery any possibilities??? Hi Dr. Creswell. Im not aware of studies explicitly about athletes after Ross procedure for BAV. We briefly talked about the Ross procedure vs mechanical valve replacement. The echo in Jan asc aorta Diam 4.2 cm z-score 6.4. What should I do ? Since he had to stop playing.. depression has set in. I do not do any kind of sport and I want to have healthy life at make sure my situation not getting worse and I weight 90 kg. Approximately 1%-2% of the population are born with an aortic valve that only has two cusps. Something they suspect is also from birth but never previously picked up. Website designed by Gatorworks. The problem is I have developed an aneurysm on my ascending aorta of 44mm. Thanks for the article! Maybe thats not surprising, given that Im a heart surgeon and that many individuals with BAV need operation at some point. My family is pressuring me to quit strenuous cycling but I am thinking that switching to longer rides at lower heart rates would not accelerate valve wear or otherwise be bad for me. Diagnosed last year while looking at something else. It seems to be a very interesting option for those who have aortic dilatation due to Marfan or BAV (which is my case). 2023 Baton Rouge Clinic. And my doctor do not give me responsive and exact answer to my questions regarding sports. Thanks for sharing. diagnosed wid BAV AND AS WITH AR My cardiologist is not concerned. Thank you for best websit. It was a shock to the system to Hear that we need to consider a repair considering we didntt think this was happened until hey was an adult. The mechanical valve conduit replaces the valve with a mechanical valve and the aorta with a Dacron fabric tube. It also featured an extended chat with Schwarzenegger's old boss James Cameron, and, despite an attempt, not even the mighty Arnold could pry any Avatar 2 secrets loose. May 11, 2010 -- Barbara Walters said on Monday that her upcoming heart surgery, a procedure known as an aortic valve replacement, will hopefully correct a problem of which . Aorta diameter (34 mm|34 mm); PS I am really interested to know if HIIT is too intense a system of exercise for people with BAV. Thank you for nice article. Many athletes with bicuspid aortic valve (BAV) may continue to participate in their sports.provided there are no other problems, either with the aortic valve or nearby aorta. Thanks for sharing your sons story. document.getElementById( "ak_js_1" ).setAttribute( "value", ( new Date() ).getTime() ); Dr. Larry Creswell on athletes and heart health. To help correct the regurgitation, the cusps of the patients valve leaflets can be tailored, with the valve leaflets left in place. Youll need to rely on your doctors for advice about your condition. Thanks very much. This year (her junior year) her Cardio doc is saying that she cant in good conscious clear her for basketball (the sport my daughter LOVES). Women are 50 percent more likely to be given a wrong diagnosis after a heart attack and are at a greater risk of dying within a year of a heart attack than men. Hi, my name is Hector and I am 34 years old. BAV is one of the most common congenital heart conditions, occurring in about 2% of individuals. Frontiers | Transcatheter Aortic Valve Implantation in Sievers Type 0 The issue of how much (& what types of) exercise after surgery is difficult because we dont have good studies (& evidence) upon which to base recommendations. And slow enlargement of the aorta is common for patients with BAV. I dont know why this formed as I have had the problem valve replaced many years ago. My AVG HR on a daily basis is between 61-64 (that includes a workout where it exceeds 150 at times), I have no intentions of racing this marathon, simply crossing the FINISH line, and my heart rate will not exceed 150 I will walk when/if necessary. The procedure was performed at the Cleveland Clinic. Schwarzenegger's Aortic Valve Replacement | MedPage Today At my last evaluation, my aorta measured between 4.3-4.5 cm, depending on where the measurement was taken, and the regergitation was classified in the moderate range. Its awesome to see you are diligent at responding to people also. So my question: does there appear to be any performance advantage of tissue valves over mechanical or does the fact that Im on the anticoagulant anyway make the mechanical valve sort of a no brainer choice? It has a male predominance and often occurs in multiple members of the same family, suggesting that it may have an autosomal dominant inheritance, perhaps with variable penetrance. Could the changes in my LV be the result of the physiological, not the pathological change? I cant lift over 40lbs and I cant continue my work as a tradesman as it requires lifting over the 40lb mark. Jeff/Doc, Bicuspid Aortic Valve Symptoms and Treatment | Baptist Health Bicuspid aortic valve. My son is devastated, depressed, and wanted to play ball in college. Thanks for the infoI really appreciate what you,have to say. Its weird because sometimes when Im resting I can feel a little weird fluttering.. Because it was just a cardiologist, not a sports cardiologist or physiotherapist. All rights reserved. Thanks for the very insightful post, and for taking the time to reply to everyone here. mod-severe regurgitation I took it up 7 years ago. I like to thank you in advance for reviewing my question and also, thank you for such a great blog. Theres a saying if you watch a group of kids running around, you would never know who had a heart defect unless they lifted their shirt. This list, which may shock you, includes Olympians, Athletes, Musicians and more, all with an invisible illness. James Cameron checks in from Pandora with a status report. And my wife is screaming at me every time I try to exercise :)). 2. What does heavy weights mean? Interesting situation Sean Miller. Bicuspid Aortic ValveA Common Form of Structural Heart Disease Its conceivable that an echocardiogram a week afterwards could be abnormal simply because of the race. Im aware that those days are past, but to abandon every activity seems like a prison sentence What is safe side threshold? Contemporary reports suggest that life expectancy with BAV is no different from the general population. I am a marathoner with BAV and no other cardiac issues. Yes, there are many athlete patients whove had operation for BAV/aortic replacement and returned to a variety of sports. However, many people will develop complications from their BAV and may need surgery in their lifetimeeither to repair or replace the aortic valve, the thoracic aorta or both. coarctation of aorta. Editorial Review: Andrea Cohen, Editorial Director, Baldwin Publishing, Inc. This is such an interesting blog, I wish I had known of it sooner. Bicuspid Aortic Valve Have you heard about the PEARS procedure? Aortic replacement. I have had scans and echos for as long as I can remember and have never been on medication nor has this condition stopped me from doing anything I have wanted. No aneurysm. A few hours after helping the woman, she began to experience chest aches, soreness in both arms, nausea and clammy skin. Bicuspid aortic valve (BAV) is the most common form of congenital aortic valve disease, in which the valve has only two leaflets instead of the usual three; it affects up to 2% of the population. She partnered with the American Heart Association to encourage others to get CPR training that could potentially be life-saving. We use surveillance (you mention every 6 months) because usually problems with progressive enlargement of the aorta or with the valve itself can be picked up before there is any lasting harm. Thats the reason we try to place the largest possible substitute valve in patients who need replacement. And during the years, this remained pretty stable. First, a disclaimer.My practice is devoted to adult patients. PS: I noticed that the option Notify me of follow-up comments by email doesnt seem to work. Bicuspid valves are quite common (1-2 percent of the population). He was just diagnosed with functional BAV due to partial stuck together of two leaflets (out of three, as far as I understand, they are equal). He had a mild BAV and was told that he can play with no restriction. Im a 29yo CrossFit addicted man who just found out I have BAV while applying for the defence force here in Australia. Yes, as the patient grows, so will the aorta.and eventually you get to the traditional >40 mm cutoff where activity restrictions are advised. Arnold Schwarzenegger Test Drives New Aortic Valve on Cleveland Jansen Panettiere Family Reveals Actor's Cause Of Death Palace Insiders Say Prince William Is Already Furious About Prince Harrys Memoir Leaks, Prince Harry alleges Prince William attacked him over Meghan Markle in a new excerpt from, Scene Stealer: The True Lies of Elisabeth Finch, Part 1, Rupert Murdoch Knees Trump in the Balls While Hes Doubled Over Coughing Up Blood, By BG017/Bauer-Griffin/GC Images/Getty Images. I understand its strenuous activity but if Im for example bench pressing it will get harder for me to put it up at the 8th rep.. Whether 130 beats per minute is a good cut-off truly isnt known. As chemist mostly works in a lab not in the field. I was training for a marathon when I was 62 years old and diagnosed with BAV with severe regurgitation. Diagnosis was made because pulse dropped to 30 (normally 52), and pacemaker was thought to be needed (no symptoms other than low pulse for a few days). triangle chokes, other blood chokes) could be putting pressure on my heart and cause my aorta diameter to increase? I too am looking for information on effects to performance since I am a Masters racing cyclist with 25 years of racing/riding long events. I used to be very muscular prior surgery and 3 mounts ago I started with 5 km runs, push ups and pull ups 3 days a week, slowly progressing. Thank you so much! There are certainly athletes whove returned to their sports after valve (and aorta) repair/replacement. Im followed by a cardiologist who only says not too much weight lifting.. In fact, in some people they can go undiagnosed for years. Background: Transcatheter aortic valve implantation (TAVI) has achieved satisfactory outcomes in the selected patients with bicuspid aortic valve (BAV), predominately type 1 BAV (~90%). His cardiologist said he cant play. Many of us are not familiar with the many types and facets of the martial arts. May 10, 2010, 4:50 PM. Bicuspid aortic valve : MedlinePlus Medical Encyclopedia While I do expect to have a replacement done later in life, the repair was the best decision I could have made. No enlargement of aorta or any other problems. I first wrote about BAV in a short post here at the blog back in 2009. I suspect it had been leaking for a long time, as I felt no different; however, my recovery from long runs took longer than in the past (old age?). , Bicuspid Aortic Valve Disease, Acquired Valve Disease. To me, cardiologists are not sports people and air on being absolutely over cautious. Only your cardiologist and heart surgeon will be in a position to make those considerations. My doctor says i use losartan for decrease my blood presure. Who Qualifies for TAVR | Eligibility and Treatment Guidelines She was originally under the impression she felt the way she did simply because she was exhausted. My son is a baseball player, so that is good. In addition, the Left ventrical has slowly increased over this same time period from 5.87 to 6.6 cm. Patients whove had aortic valve replacement and/or replacement of the aorta will require life-long monitoring by their doctor, with periodic echocardiogram and/or chest CT scanning. with valve area of 1.4 cm2 and aorta of 4.1 cms Lastly, a human donor valve was inserted into the pulmonary valve position. Thank you for the blog that addresses the athletes point of view, and feelings. My cardiologist has advised me to avoid high impact activities such as weight lifting and endurance training. Medical therapy may be useful to slow or halt the progression of aortic valve disease and aortic enlargement by reducing the blood pressure and the blood pressure across the aortic valve. Like you mention, one theory is related to the aortic blood flow. Holding breath during lifts valsalva). I had a ventricle septum defect patched up shortly after birth with no further follow up and a full recovery. They included a web link to the European medical guidelines. For athletes who return to sport after AVR and aortic replacement, its important to settle on whats safe with your doctor(s) ahead of time. Aortic dissection, a tear in the wall of the aorta. Enjoy! What a great resource! I am followed every 2 years. I was only diagnosed with BAV after a routine examination and only because my company has increased in size above a threshold at which all employees are supposed to be subjected to this examination (weird law in Belgium). Do you have a congenital heart defect? Your surgeon will be in a good position to understand the exact details of operation that might be relevant when deciding whats safe.. I know that heart surgery can be scary.but I also know that for the vast majority of patients with these conditions, surgery goes well and the outcomes are good. The aortic valve is between the left lower heart chamber and the body's main artery, called the aorta. "Weve gotten a lot closer and weve learned each other on a whole different, deeper level, she told PEOPLE in 2015. Heart Valve Disease Personal Stories | American Heart Association "I had to make lifestyle and diet changes, she said. Great article! I dont think theres a way to predict the future in this circumstance. Either way I often think my cardiologist looks at me as if Im nuts and that my current 175 miles a week training should be thought of as beyond expectations post open heart surgery. The data regarding the progression of disease in athlete patients with BAVare limited. what recommend me? He sees his cardiologist every year. Common symptoms include chest pain, shortness of breath, dizziness and fainting. BAV is the most prevalent congenital heart defect, but can go undetected for years - even into adulthood. I agree that its somewhat surprising that more detailed information isnt available. Hello Dr. Creswell, The surgery involved a replacement heart valve made from a transplanted tissue sourced from his pulmonic valve. Pathology. After that, most patients can gradually return to activities that put stress on the sternum and upper extremities. The procedure was performed at the Cleveland Clinic. It sort of flutters open and shut. The doctor said she would see if she could talk about his case with the surgical panel but she said even if he did have surgery he couldnt have a career in sports??? running? ANYTHING other than walking and golf? Exercise and sports are usually safe if there is mild aortic root enlargement but no other heart or vascular problems. Options for operation Im obviously quite anxious that Ill drop death! A week after he made the varsity team as a freshman he was told by the doctor he couldnt play. Hi . Hi, Fantastic website, there is very little actual information on this on the web. Im a 42 year old male and have been a highly competitive distance runner since high school. Would this constitute as too much in your opinion ? At this time, it is not known whether Arnold received the new valve using a surgical aortic valve replacement (SAVR) or atranscatheter aortic valve replacement (TAVR). 1. Weve known the risks and my daughter has done well to avoid scrapping for the ball etc. I certainly know of athletes who return to all forms of endurance sport as well as weight-lifting after operations like yours. These leaflets open and close to regulate blood flow from the heart into the aorta, and prevent blood from flowing back into the heart. Baton Rouge, Louisiana 70808. Im a 33 yro female, diagnosed with BAV. Many thanks. I am now in no mans land of not needing immediate surgery (per the pressure number in left ventricle) and not being able to run more than 30 min.